Volunteer driven since 1956, and still answering its own phone.

Vision and mission

A world free from the pain and suffering of inherited bleeding disorders.

Our mission is to strive to improve the health and quality of life for all people with inherited bleeding disorders, and to find a cure.

The organisation's own values page is plain about where its identity comes from: in part, from the loss suffered by this community, including people infected with HIV and Hepatitis C through the blood or blood products they depended on for lifesaving treatment. That memory sits at the core of the work.

Values in practice

How the work is guided

• Providing information, programs and services to all people with inherited bleeding disorders, of all ages, and their families.
• Staying well connected to the grassroots community.
• Actively representing people with inherited bleeding disorders to improve their quality of life, while working towards a cure.
• Achieving quality, efficiency and innovation while remaining open to change.
• Acting honestly, responsibly, openly and accountably.
• Treating the people we interact with with dignity, fairness and compassion.
• Fostering meaningful, collegial relations and strong partnerships among our diverse stakeholders.

The team

Three named people run the office

Pharmaceutical partners

The partners named on the site

Bayer  ·  CSL Behring  ·  Novo Nordisk  ·  Octapharma  ·  Pfizer  ·  Roche  ·  Sanofi Genzyme